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Cure SMA's Overview

Total employees81
HeadquartersElk Grove Village
Founded1984

Cure SMA is a national non-profit organization dedicated to the treatment and cure of spinal muscular Atrophy (SMA) — a disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. Cure SMA funds and directs comprehensive research that has led to approved treatments, provides a multitude of support programs for families and individuals affected by SMA, and advocates for policies that benefit the SMA community. Their vision is a world where everyone with SMA has the resources and support they need to live full, engaged lives.

Where is Cure SMA's Headquarters?

HQ Function

Serves as the central hub for Cure SMA's national operations, including strategic planning, research program administration, fundraising, patient and family support services coordination, and advocacy leadership.

Notable Features:

The headquarters is likely a functional office space designed to facilitate collaboration among its staff and support its mission-driven activities, rather than notable for specific architectural features.

Work Culture:

The work culture at Cure SMA is mission-focused, characterized by passionate individuals dedicated to making a difference in the lives of those affected by SMA. It likely fosters collaboration, empathy, and a strong sense of community.

HQ Significance:

The headquarters is significant as the command center for the largest SMA-focused organization in the U.S., driving progress in research, care, and support for the SMA community nationwide.

Values Reflected in HQ: The headquarters' operations reflect Cure SMA's core values of compassion, integrity, collaboration, innovation, and a relentless pursuit of a cure and better quality of life for the SMA community.

Location:

While Cure SMA's primary operations and direct support services are focused within the United States, it plays a significant role in the global SMA community. This includes funding international research collaborations, sharing best practices with SMA organizations in other countries, and advocating for global access to treatments and care. They often participate in and support international conferences and initiatives related to spinal muscular atrophy.

Street Address:

925 Busse Road

City:

Elk Grove Village

State/Province:

IL

Country:

USA

Cure SMA's Global Presence

Buying Intent Signals for Cure SMA

Highperformr Signals uncover buying intent and give you clear insights to target the right accounts at the right time — helping your sales, marketing, and GTM teams close more deals, faster.

Notable news
Hiring actively
Corporate Finance
Corporate Finance
Corporate Finance
Corporate Finance
Corporate Finance
*Example signal, not calculated in real time

Executive Team of Cure SMA

As of April 2025, Cure SMA' leadership includes:

Kenneth Hobby - President
Mindy Cameron - Chief Strategy Officer
Jill Jarecki, PhD - Chief Scientific Officer
Colleen McCarthy O'Toole - Chief Operating Officer & Chief Development Officer
Sarah Mueller - Vice President, Marketing and Communications
Lisa Belinde - Vice President, Family Support

Investors of Cure SMA

Cure SMA has been backed by several prominent investors over the years, including:

Biogen (Corporate Partner & Research Funder)
Genentech (Roche) (Corporate Partner & Research Funder)
Novartis Gene Therapies (Corporate Partner & Research Funder)
PTC Therapeutics (Corporate Partner & Research Funder)
Scholar Rock (Corporate Partner & Research Funder)
Numerous Private Foundations and Individual Donors

Executive New Hires/Exits in the Last 12 Months

Hire0
Exits0

No major publicly announced executive hires or exits at Cure SMA have been identified in the last 12 months. The leadership team appears stable.

Technology (Tech Stack) used by Cure SMA

Discover the tools Cure SMA uses. Highperformr reveals the technologies powering your target accounts — helping your sales, marketing, and GTM teams prioritize smarter and close faster.

Cure SMA Email Formats and Examples

Cure SMA likely utilizes common professional email formats for its staff. Based on publicly available information and standard organizational practices, the most probable format combines elements of an employee's name with the domain curesma.org.

[first_initial][last_name]@curesma.org

Format

khobby@curesma.org

Example

75%

Success rate

News and media

Cure SMAJune 7, 2024

Cure SMA News: Advocacy Alert: Congressional Sign-on Letter in Support of Newborn Screening Reauthorization!

Cure SMA is calling on advocates to urge their U.S. Representatives to sign a bipartisan letter supporting the reauthorization of vital newborn screening programs. This initiative aims to ensure early detection and intervention for conditions like SMA....more

Muscular Dystrophy NewsMay 29, 2024

Cure SMA awards $580K in grants to support clinical care research

Cure SMA has awarded $580,000 in grants to support three new research projects focused on enhancing clinical care for individuals with spinal muscular atrophy (SMA). The funded studies will investigate areas such as patient-reported outcomes, scoliosis, and sleep-disordered breathing in SMA....more

Cure SMAFebruary 20, 2024

Cure SMA News: CureSMA Launches the SMA Clinical Trial Readiness Program

Cure SMA has launched the SMA Clinical Trial Readiness Program, aimed at accelerating the development of new treatments for SMA by better preparing the patient community and clinical sites for participation in research studies....more

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